CAC Members at an APOLLO Steering Committee Meeting on March 4th, 2020

VOICES Receiving the Gift of Life: Stories from Organ Transplant Recipients — Open-Access Publication and Education Guides Available

Thanks to the generosity of Mid-America Transplant, the UCSF Lung Transplant Program, DonorConnect, and individual private donations, The NIB Foundation has published a symposium, “VOICES Receiving the Gift of Life: Stories from Organ Transplant Recipients.” The symposium is open access and includes narratives written by organ recipients as well as commentaries by #APOLLO investigators Dr. Roslyn Mannon & Dr. Krista L. Lentine, The symposium was originally published in Volume 12.2 of Narrative Inquiry in Bioethics.

The stories and commentaries in “VOICES: Receiving the Gift of Life: Stories from Organ Transplant Recipients” provide an opportunity to reflect on the experiences of organ transplant recipients and offer considerations for transplant professionals. In addition to VOICES, the NIB Foundation developed two teaching guides for organ transplant recipients and transplant professionals. The guides contain discussion questions relating to each story, which are freely available and can be used by anyone to foster education and conversation about this important topic.

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APOLLO

APOL1 Long-term Kidney Transplantation
Outcomes Network (APOLLO)

The purpose of this study is to test kidney donors and kidney transplant recipients for apolipoprotein L1 gene (called APOL1) variants (or forms of the gene) and to see how these may affect them. Genes control the traits that you inherit from your family such as your eye color or blood type. Variation or changes in genes can also put some people at risk for developing certain diseases. Previous research has shown that variation in the APOL1 gene can put people at higher risk for kidney disease. The purpose of this study is to test kidney donors and recipients for APOL1 gene variants to see how this gene may impact people who receive a kidney transplant and those who donated a kidney.

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